Mid-South Comfort Care Coalition – living and dying with dignity, hope, and comfort

October 15, 2011 in Question of the Week, When someone we know is nearing death, how do we help them die with dignity? by Candia Ludy

Based in Memphis, Mid-South Comfort Care Coalition is a non-profit composed of  “…. a group of citizens dedicated to helping individuals live with dignity, comfort and peace as they near the end of life. Our mission is to serve as a broad-based community network to educate the members of the community and advocate for people with life-threatening illnesses and end of life concerns.”

Workshops, speakers, links to legal aids such as the advance directives, information on hospice, and a way to contact kind people who’s life work is to be there for the dying and their loved ones, can be found through this website.  www.midsouthcomfortcare.org

It is a good place to start if you are looking for what’s available in the Memphis area.

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Prepare for death by knowing how to live

October 8, 2011 in Question of the Week, When someone we know is nearing death, how do we help them die with dignity? by Teri-Hayslett

When someone we know is nearing death, how do we help them die with dignity? How do we help the family navigate the medical desire to preserve life at all cost? How can we prepare to die with dignity?

The real question is whether or not your religious values are in order now. Then they do not have to be discerned at the end of life. I encourage people in my congregation to have conversations with their families about what matters most in making decisions around end-of-life issues.

The church provides a very helpful document that guides family and friends through all the important considerations. It is Five Wishes, a document created by Aging with Dignity written with the help of The American Bar Associations’ Commission on Law and Aging, and the nation’s leading experts in end-of-life care. It is a living will that expresses your personal, emotional and spiritual needs as well as your medical wishes when you become seriously ill. It meets the Tennessee requirements under law and a sample may be found at www.agingwithdignity.org.

It is also vital to have a durable power of attorney for health care indicating the person whom you want to makes decisions for you if you are not able to do so. In addition the church offers a Life Crises Form that allows a member to make known his or her requests for a memorial or funeral service, burial or cremation, etc. This document is kept on file at the church office.

The living will and durable power of attorney for health care should be kept with important legal documents, and copies given to family members, health care provider, lawyer and clergy. One person should not bear the responsibility of making difficult decisions regarding end-of-life care. In addition to family, you should discuss your concerns and expectations about dying with dignity with your minister and doctor. Both should understand, respect and support your values. This will make the navigation of medical decisions easier for all involved, and insulate family and friends at a vulnerable time from those who are tempted to impose their own agendas.

We should die as we lived, with the integrity of our deepest spiritual values. Essential to faith is coming to terms with the reality of mortality and what it means to create a life worth living knowing that it will end. The best way to love anything is to know that you will eventually lose it. It makes what we do matter. It informs us that what matters most is our relationship to things. This is a life-long process of spiritual development and it informs our dying as well as our living. Like training for the Olympics it is not something you can do in one week or month. We prepare for our death by knowing how to live.

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Offering help with reconciliation

October 8, 2011 in Question of the Week, When someone we know is nearing death, how do we help them die with dignity? by L. LaSimba Gray, Jr.

When someone we know is nearing death, how do we help them die with dignity? How do we help the family navigate the medical desire to preserve life at all cost? How can we prepare to die with dignity?

Death and dying are inevitable aspects of life; too often we live without adequately preparing to die. Many never get around to planning an estate or writing a will. The writing of a will is a source of dignity and comfort. You make known your desires and wishes for the dissolution of your earthly assets. This relieves your loved ones of the pressure of deciding for you, they don’t have to guess what you want or what they think you wanted; it is in written, legal form.

As members of the clergy, we also serve as spiritual advisers. We can advise the processing of the dying person’s anxiety and fears. Make suggestions for the dying person to journal (write down their feelings and concerns) and offer non-judgmental listening. Ask if there are any matters that we as clergy can be of help. Even at the point of death, affirmation of faith is priceless. We should never shy away from offering opportunities for reconciliation with God, family and friends. Unfortunately, many die with unresolved broken relations and grief. Clergy and spiritual leaders can certainly help with reconciliation; after all, the Christian faith is about reconciliation. At Calvary, God is in Christ reconciling the world unto Himself.

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Tiffany McClung: Death simply sucks

October 8, 2011 in Featured Rotator, Question of the Week, When someone we know is nearing death, how do we help them die with dignity? by Tiffany McClung

When someone we know is nearing death, how do we help them die with dignity? How do we help the family navigate the medical desire to preserve life at all cost? How can we prepare to die with dignity?

I used to think that I was pretty good at simply being present with those grieving the loss of a loved one. I used to think I could empathize and be understanding. And, then my own father died and I realized that I had not had a clue. My big sister deals with patients dying on almost a daily basis and I remember sitting next to her on a pew, both of us crying as we awaited the deluge of mourners who would come through to pay their respects. My big sister, whom I have rarely seen cry by the way, just wept and said, “I don’t know how to do this.”

We clergy think we know how to do this, but when it hits home it becomes abundantly clear that none of us really know how to handle this whole death thing. My deep theological belief about death is that it sucks. Can you print that in the newspaper? This seminary trained pastor and chaplain can’t think of any eloquent way to describe it. It simply sucks.

It took my daddy dying for me to understand this down to my very bones. I like to think it has made me a better pastor to those who are grieving or who are trying to make tough decisions about loved ones who are near death. So, the best I know to do is share our story.

On the day that my father was told he had cancer and that it was terminal, my two sisters, brother, and mother were all standing there around his bed with him. We cried, my dad made some kind of joke, we laughed, the doctor and nurse weren’t quite sure what to do with us, and we proceeded to have one of the best afternoons and evenings that my family has ever experienced. We did what we do best. We ate. We ate and sat around the table laughing, joking, crying, and planning my father’s funeral while he was still with us to tell us what he would like for it to be.

A week later he was dead. He died in a hospital room alone with my mother. I think if we had known it was going to happen so quickly, he would have just stayed at home. But, the rate at which he deteriorated during that week was incredible and his pain became so much that everyone was hoping the hospital stay could help. After one radiation treatment, I believe my father had had enough. In his own way, he said his goodbyes to me and my siblings – though we did not know it at the time. And, the next morning, my mother said a prayer for him in which she grieved, but said, “God, I don’t want to lose him, but I don’t want him to suffer.” Dad said, “Thank you, Honey.” And, within half an hour he was dead.

Other than the fact that had we known we would have kept him at home, there isn’t anything that any of us would change. I believe that my father made choices about his death and died with as much dignity as he had lived. We were lucky that he was in condition to do so. I do know that this is not always the case. I would do just about anything if I could have him back, physically present with us, but there are a lot of things that are worse than death. Even so, it sucks. So, we best be doing all we can to help the dying be ushered into eternity in as holy way as possible.

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Decisions made in times of distress are rarely rational

October 8, 2011 in Featured Question of the Week, Question of the Week, When someone we know is nearing death, how do we help them die with dignity? by Bashar Shala

Yesterday I was about to start a routine procedure on a clinically stable patient who happened to be a physician. After he shook my hand, he prompted me: “I don’t want life support!” I have yet to meet a physician who wants prolonged life support for themselves.

I have been there many times as a physician when the moment of decision comes. To use or not to use life support, that is the life or death question!

Death is the certain reality of life than none can escape, but most are rarely prepared for. We avoid discussion about it or even mentioning it on a personal level. It is just what happens to “other” people. Prophet Muhammad said “Remember death frequently” as it is the spiritual reminder for the true life to come.

Life support has an important role in medical care; however it should not be part of “end-of-life” care. The fact of the matter is: artificial life support in that situation does not prevent death! It is only prolonging the inevitable. Sometimes it is responsible for prolonged suffering to the patient and the family, and piling up astronomical numbers to the cost of care. It has contributed to a national crisis of health care. The bulk of healthcare cost is spent at end of life.

An informed patient and family are better able to make the right decision. A discussion needs to occur before reaching that point between the patient, the family, the physician, and the spiritual advisors. The decision which is made in time of distress is rarely rational and mostly based on emotions as we part with loved ones or life itself.

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Living life with meaning

October 8, 2011 in Question of the Week, Spotlight Answers, When someone we know is nearing death, how do we help them die with dignity? by Maxie Dunnam

When someone we know is nearing death, how do we help them die with dignity? How do we help the family navigate the medical desire to preserve life at all cost? How can we prepare to die with dignity?

Preserving life at any cost is not an ultimate value; rather living life with meaning is. Living life with meaning in some cases may mean making a decision to let life and death work a natural process without superficially keeping persons breathing who are not really “living.” Living wills are important because people can share with loved ones how they want to live and die. We can take a huge burden off our loved ones by making it clear to what degree we want to be kept breathing when we no longer have the capacity to “really live.”

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Working toward our ascension

October 8, 2011 in Question of the Week, Spotlight Answers, When someone we know is nearing death, how do we help them die with dignity? by Alex Wellford

When someone we know is nearing death, how do we help them die with dignity? How do we help the family navigate the medical desire to preserve life at all cost? How can we prepare to die with dignity?

If life is eternal, then it may be helpful to consider that perhaps all of us are working on our ascension, as did Enoch, Elijah and Jesus. The kindness of friends and family at the times of greatest challenge brings a dignity that is never forgotten.

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Say the things that matter most

October 8, 2011 in Question of the Week, Spotlight Answers, When someone we know is nearing death, how do we help them die with dignity? by Rosalyn R. Nichols

When someone we know is nearing death, how do we help them die with dignity? How do we help the family navigate the medical desire to preserve life at all cost? How can we prepare to die with dignity?

The morning of the day my father died, Monday, November 26th, he announced it as he lay in his Methodist Central Hospital bed while watching Destiny’s Child on the Today Show. My Uncle Charles said, “No Bert don’t say that, you’re not dying.” I recall to this very day, the expression on my father’s face as our eyes connected and it was clear that he was making an announcement that we were not yet prepared to receive. I kissed my father on the cheek and went home to change and catch my breath. When I returned about an hour later, my father died, taking his last breathes in my arms.

I have since lost my mother and what I know for sure is that for my parents, the gift of my presence was essential. Not merely in those last moments, but in those days before death comes to call us home. Each doctor’s appointment, each examination, every pill taken, every meal prepared, all of those were the gifts that we give in being present with those we love whose death is more imminent.

The other essential gift that my parents gave me is that they were willing to talk about their deaths, their wishes, their expectations. I knew very clearly what it was that both of my parents wanted in their last days. Even when it was difficult to hear I knew that it was not about me. Later I would be most grateful to be able to know and therefore honor their wishes.

Since that time I’ve read the book The Four Things That Matter Most: A Book About Living by Ira Byock, M.D., that encourages all of us to take the time to say in our relationships to say ‘I love you,’ ‘I thank you,’ ‘I forgive,’ and ‘Please forgive me’.

If there is anything that I would add to my own personal experience with those I love who have died, and standing with others in the midst of their loss, it is that it is also essential to say the things that you need to say to those we love. We are often afraid when people are sick to confront, but I have found that people want to talk, they are willing to listen, they need to hear. And in the finality of death, saying the things that matter most can be the most healing experience for both the dying and the those left to live in the shadow of their absence.

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God holds on when we let go of our bodies

October 8, 2011 in Featured Question of the Week, Question of the Week, When someone we know is nearing death, how do we help them die with dignity? by Micah Greenstein

When someone we know is nearing death, how do we help them die with dignity? How do we help the family navigate the medical desire to preserve life at all cost? How can we prepare to die with dignity?

I have learned from being with people as they die that what they fear most is not death itself. They fear two primary things: being in pain and being alone. Death is a haven to the weary and a relief to the sorely afflicted. A St. Jude child in my congregation who died peacefully taught me that by taking care of these two things – alleviating pain and surrounding that precious soul with love – he was able to leave this world with dignity and in peace. Faith teaches that whenever the time comes for our bodies to let go, God holds on.

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Accepting the final phase of life’s journey

October 8, 2011 in Featured Question of the Week, Question of the Week, When someone we know is nearing death, how do we help them die with dignity? by Elaine Sanford

When someone we know is nearing death, how do we help them die with dignity? How do we help the family navigate the medical desire to preserve life at all cost? How can we prepare to die with dignity?

One of the most difficult subjects for any of us to broach with family, friends or even strangers is that of death and dying. Many of us are concerned that our words won’t reflect the sensitivity of the moment or that we might appear to be too cavalier or shallow about what the dying person is experiencing. After all, no one has firsthand knowledge of what it is like to die.

In the summer of 2008, I was in complete ignorance on this subject when we found out that my sister was losing her battle with breast cancer. As if it were yesterday, I can recall the nurse clarifying the doctor’s words. “Mrs. Mosley, do you understand what the doctor is saying? There is nothing else that can be done medically. Your cancer will kill you.” We felt that the words were thoughtless and heartless words at the time. But, the nurse intended for our sister and for the family to face the reality that no matter what we might try to do- our sister was going to die. No heroics or breathing machines prevent the inevitable outcome. We were forced to accept reality.

So, how do you help someone to deal with death? In my sister’s case, we began by helping her to feel comfortable talking. We all made an effort to talk less and to allow her to share with us whatever feelings, concerns, or fears she might be experiencing. We agreed that we would not transfer our own feelings to her. At first, she expressed concerns that no door be closed to her room; and that she never be left alone. We assured her that we would never leave her side throughout her transition. We asked whether she wanted us to read the Bible and sing to her. She did. Since none of us were singers, you might imagine that this was a real highlight for her. She always laughed.

I learned through my sister’s transition that dying people are simply living people whom God has allowed to know that their time is near. So, we help the dying person by speaking truthfully to them and by accepting the fact that death is the final phase of the journey for every living thing. Just as a flower fades and eventually dies, a human life blossoms to its peak, and gently over time, it fades and dies.

In her final days, my sister laughed and talked about her life and her only son. She gave advice. She unveiled secrets about herself that we never knew. She gave instructions for how she wanted her business affairs to be handled. And, finally and most importantly, she reconfirmed her profession of faith in Jesus Christ. Just before midnight on July 12, 2008, she breathed her last breath as we stood at her bedside reading scripture, singing (off key) and recalling her laughter.

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